Lynch Syndrome UK
Raising awareness, saving lives
About us
LSUK was founded in early 2014 by a group of people who met on a social media support group originally set up by the late Janet Norridge. Being frustrated by the lack of information and stories of erratic screening regimes throughout the UK, we came together to change things for the better for people with Lynch Syndrome (LS) and their families.
We achieved registered charity status in May 2015, after much hard work. As a charity, we aim to offer support and the latest information to all people with LS.
We are passionate in our mission to raise awareness of this little-known genetic condition, both to the medical profession and the general public, and in the process help to save lives.
Please support us
DONATE NOW
Mission statement
Lynch Syndrome UK aims to ensure that for the public benefit, people and their families affected by Lynch Syndrome are provided with support in the form of information, signposting, and listening, also to increase public awareness of the syndrome, educating members of the general public and healthcare professionals.
Our vision is that all people affected by Lynch Syndrome in the UK have access to standardised screening, thus enabling prevention of the development of cancer and early diagnosis enabling survival.
Lynch Syndrome UK is an all-volunteer organisation and is founded and governed by Lynch Syndrome survivors and their families. The charity is dedicated toward protecting families and saving the lives of those at high risk for a hereditary genetic predisposition to various cancers which often strike at an early age.
If diagnosed early, we believe Lynch Syndrome survivors have positive outcomes that enhance survival, longevity and quality of life as well as the emotional well-being of those of us who are affected by Lynch Syndrome.
The charity’s aim is to be the leading source of information and support for individuals and families affected by Lynch Syndrome in the UK.
Join us in our very friendly and knowledgeable Lynch online support group. You'll need a Facebook account and need to answer a few simples questions to be accepted.
Our group is a closed community so your privacy is assured and nobody from outside the group will see anything you post.
We currently have nearly 4000 members in our group helping to answer your questions and give support and advice